Venn Diagrams
1.
According
to Wikipedia, a normal human pregnancy lasts about
38 weeks after conception, a time span “somewhat arbitrarily divided into three
trimester periods.” That “arbitrarily” fascinates me and encourages me to think
about the notion of trimesters applied not just during pregnancy but also to
whole life spans, both actual and expected. I’m 56, with an expected life span
of 80 years, so the trimesters of my projected life—you could call them “putative”
trimesters—began when I was 1, 27, and 55 years old. Thinking about lives in
this way, in chunks that overlap with other chunks of other lives makes me
recall the Venn Diagrams once commonly used to teach elementary logic.

Mom
died fourteen years ago when she was 70 and I was 41, so a Venn Diagram of our actual
lives together would show circles that overlap about 3/4 of my circle and slightly
more than half of hers. A Venn Diagram of my son’s and my actual lives together—he
is 26 and I am 56—locates his circle entirely inside mine and overlapping it by
about half; until I die, no part of his circle exists outside my own. In Venn
Diagram terms, he is still in the womb:

But in a Venn Diagram of our expected lives, a different picture emerges, our circles intersecting
midway, and each of us at the end having lived about half our lives with and
half without the other.

What concerns me is that empty space to the left of
the area of intersection, that space where E.__’s circle does not contain a
single point of my own.
2.
I
am 30, in the second trimester of a life predicted to last 80 years, and also in
the second trimester of my first pregnancy, in the middle of the middle of
things.

I’m
reading a book, probably What to Expect
When You are Expecting, that says something along the lines of what you can
read on the internet now:
Welcome
to your second trimester, also referred to as the "golden
trimester" by many! First of all you are no longer experiencing many
of the initial symptoms of early pregnancy. You are also in that middle
period where the baby is not yet big enough to create new pains in your
body. Gone (for the most part) are the nauseous feelings and sleepless
nights. You are starting to regain that energy that you never thought
would return and you are very optimistic about your pregnancy.
In
the second trimester of her pregnancy with me, my mother was also in the middle
of the middle of things, 27 and in the second trimester of her life. It was
then that she began to bleed. The bleeding stopped when she took the
prescription standard for miscarriages in 1957—DES—the drug that, 56 years
later, Wikipedia tells me causes defects in the reproductive organs of female
fetuses. Defects that, when those fetuses grow up, may cause them to miscarry
their own unborn young.
I develop a whopping case of premature labor and spend
most of my golden trimester in three hospitals. During that time and on through
the (even-less-golden) third trimester my son is bathed in a chemical soup of magnesium
sulfate dripped from an IV into my wrist and terbutaline pumped through a
needle inserted into the muscle of my thigh.
In his second trimester, my son grows from an
invisible blastula into a comma, a grain of sand, of rice. On the ultrasounds,
his heartbeat looks like a pulsating star. He swells into a seed, a pea, a lima
bean, then minnow and I feel his first flutterings. He is a blind, newborn
kitten, and against a grainy gray background, I can see his face. I see him bring
his thumb to his mouth, see him open his eyes.
In the third trimester he is a leaping fish, then
something too big to do anything but turn, radically changing the topography of
my belly by heaving up a mountain on one side and carving a valley on the
other. Sometimes I make out a smaller bump—unmistakably a foot, or a fist. Together,
we make it full term, to almost 38 weeks.
3.
The life expectancy of a male born in the US in 1988
is 77 years, dividing my son’s expected life after birth into putative
trimesters, each lasting about 26 years, beginning when he is 0, 26, and 54. On
the first day of his first putative trimester he is in trouble, wedged in the
birth canal with the umbilical cord wrapped wire-tight around his neck. When
the doctor tries to slip a finger beneath it, the cord breaks. Like any torn
artery, it pumps and sprays like water through a fire hose and E.__ loses two-thirds
of his blood volume, most of it onto the green wall just beyond my stirruped
feet.
My baby spends an indeterminate number of seconds
lasting an eternity still in inside me but disconnected from his placenta. Forceps
are produced, and during another indeterminate number of seconds lasting an
eternity, he lies in terrible silence on a steel table surrounded by a thicket
of green scrubs whose hands work over him with a suction pump. Until at last I
hear it—one tiny, exhausted sigh.
“He’ll live,” the doctor says, after the third
transfusion and a week in the neonatal ICU. “There’ll be issues,” says a nurse
when, three weeks later, we wrap him up in the sweater, booties and cap Mom
knitted while we were waiting to bring him home. “Be ready,” the nurse says.
By the time he is 13 years old and halfway through
the first trimester of his expected life E.__ is diagnosed with the all the alphabet
soup acronym disorders: ADHD, OCD, NVLD (nonverbal learning disorder), PD (panic
disorder) and my personal favorite, PDNOS (personality disorder not otherwise
specified). I look down the long, dark corridor of future and see at its end: institutionalization,
jail, death.
But in ninth grade he is diagnosed—this time, correctly—with
Aspergers, and when he leaves middle school, things begin slowly to change. He
moves up the social ladder from actively-shunned-and-beaten-up-bullied to
merely ignored, an improvement that lessons the frequency and duration of the
panic attacks. Learning to tell time with his cell phone and how to drive, he
gains independence and makes his first real friends since the ones made (then lost
when we moved house) in kindergarten. From the basement I hear voices and
laughter while boys play board games, video games, and computer games. An agnostic
on my most spiritual days, I sometimes find myself kneeling, one ear pressed to
the door.
When he is 25 and in the second trimester of his expected
life-after-birth, my son moves with three friends into an apartment three miles
from our house. Driving both ways across the Richmond Bridge three times a
week, he finishes a ten-year-long college slog and graduates with a math degree.
4.
Parents of sons and daughters with autism are
haunted by the thought of their children outliving them, especially when the
disorder is profound. In the movie Autism: A Musical, one father
says he finds himself hoping—even sometimes wishing—his severely disabled
daughter will die before he does. I know a mother who makes her son hold hands
to cross a busy street, but cannot enter the intersection without thinking: I could just let go.
E.__’s Aspergers is mild in comparison with those
cases. Still, when his car broke down on the way to school two years ago, he spent
six hours pacing the perimeter of a Berkeley gas station because his dad and I
were out of town and he had not yet been walked through each step of how to
call a tow truck. While he was pacing, a kind, elderly woman came up and held
out a piece of worn carpet for him to sleep on. More recently, another offered
him spare change when she came across him shopping for groceries in our local
market. Cops have stopped him for suspicion of dui—because he was driving too
slowly. Another boy with ASD I know ended up jailed when similar incident caused him to panic and lash
out at the officers. That story has an even sadder ending—a boy who loved ice
cream so much that he mastered hundreds of recipes to serve to his neighbors
ended up homeless, then dead, found sprawled in a shallow river near his
childhood home. Aside from a few perfunctory handshakes and family hugs, I am
the only human being my son has voluntarily touched in the last 20 years.
The life expectancy of a female born in the US in
1957 is about 80 years, the age I’ll be if still alive when my son turns 50 and
reaches the third trimester of his life. The doctor whose hands, at the moment
that mattered—slipped—will be long since gone. If my son reaches his own life expectancy,
he will live out the last trimester of his life, another 27 years, without his
father or me in it.
Perhaps E.__ someday will have a child whose gestation in
the womb of his putative partner will overlap with his own life; perhaps that
child will be born and live out the first two thirds of his or her own life
span while my son is alive. It does not seem likely, though, not the putative child,
sometimes not even the putative partner, and in those dark moments I can draw
no neat circle to contain my fear, nor find any logic to confute the calculus
of loss,
I trace the Venn Diagram of our lives, my son’s and
mine: where they intersect in the middle, and then the edge-etched empty space
of E.__’s last years, clear, vacuous and illuminated like a diatom on a
specimen slide under a microscope. Tell me, who will love him, then? Remind him
to pay the rent, to shave, to replace his frayed t-shirt and jeans, not to
forget to eat? Who will love him?

Hi Becky, this looks awesome but the visuals aren't showing up for me. Can you send me (an the class) a pdf?
ReplyDeleteI am commenting here, but looking at the PDF essay. Brilliant use of the Venn Diagram.
ReplyDeleteCouple of quick notes - it's distracting to see your son named E.___ I'm not sure if you're using that for dramatic effect or to protect his identify. If it's to protect his identity, I'd suggest you just use his initial E or give him a fictitious name (you can mention somewhere that his name has been changed (or do you even need to do that? Sarah?)
In the first Venn Diagram of you, I suggest you use "Me" and "E" instead of "Mother" and "son". Personalizing it I think will work better. Also, I love the image that in Venn Diagram terms, he is still in the womb! How true and yet how odd I'd never thought of it that way.
Also, since we read left to right and since you were born before your son, shouldn't your circle be the first on the left and his next? Just a nit-picky thing, but that's my brain for ya!
"in the middle of the middle of things." Nice. Here may be an opportunity - to braid throughout the word "middle" and/or the concept of the middle of the middle of things.
Love your inclusion of actuary statistics. It works very well!
I like the short curt admonitions "He'll live" "there'll be issues."
And the image of "one tiny exhausted sigh." Hearbreaking!
When I saw the last Venn Diagram, I thought you'd made a mistake. But then.
Oh.
Or better yet. . .
ReplyDeleteO
Hi, great suggestions, Leslie. I think there's examples either way…saying you are changing his name or just changing it. It didn't bother me at first the E___ but now that you mention it here, I agree. I think an initial or another name or another initial? Does this make sense? But I don't think you need to say, "I am changing his name" that is for more journalistic pieces.
DeleteDear Rebecca, Wow, this is really working now, in my opinion. THere's so much greatness going on here. I love the diagrams, but even without, the language feels bolder, more confident, more honest. Particularly effective are the new and more gross (not grotesque, but anatomical) details of both the gestation and the birth. I also love the overlaps--made physical by the diagrams, but also present in the language--so much so that you could, perhaps, call the essay "Venn Diagram" and leave out the images, at this point. I LOVE the line "An Agnostic on most days…" this is so gorgeous, so true, so powerful an image--pure reverence and gratitude. I also love "in the middle of the middle of things…"
ReplyDeleteI do agree with Leslie about the use of your son's name. I often struggle to go all the way with this--and I don't think you necessarily have to, but perhaps find a quieter way to indicate. Also, in the 2nd section, you begin with "His second trimester." Since you also use trimesters to mark lines in his life as a growing man, I find it a little distracting to refer to his actual gestation as "his" trimester. Perhaps it is yours, or "the," as you refer to it in the next paragraph.
I commend you--such progress on this piece--it's so different from the initial draft now, and yet still moving toward the same truth. Well done, and thank you.
Hi Becky,
ReplyDeleteI am attempting to add comments to the pdf…let me know if it works. Meanwhile, here are some thoughts.
Really love this piece. And the illustrations. I think it's a great synthesis of your first two essays…I love the list (now): he's the size of a grain of sand, of rice…etc. It is more powerful together like that.
I love also how you set us up for your son with discussion of your mother and the Venn diagrams. And how the narrative surprises me in so many places -- the description of the doctor breaking the cord is heart rending and so well done. I also love the scene where E___ is laughing with his friends and the sad part about walking back and forth along the high way and the old woman giving him a piece of carpet to sleep on. This resonates with the chilling story of the young man who dies homeless and alone. Terrifying.
I don't have many suggestions at all about the structure or your language (it's beautiful). Just two thoughts for revision. I am familiar with Asbergers but perhaps all readers are not. The scene with not knowing how to call a tow truck is a great example. Most people can't relate to this. Can you have a section or paragraph where you walk out the traits of Autism/Asbergers for your son in particular and perhaps others in general? I don't need a big discussion, more the life-skills stuff like the tow truck. And also for some reason I didn't know why he was sleeping beside the road. Was it because you were out of town? Perhaps this section need s more clarification. I loved it, but have some questions having now stepped away from the piece.
I also suggest not citing Wiki? Is there a way around this, i.e. "I have read" or "I have learned" etc. Perhaps on Wiki there are links to primary sources? But to start the piece with Wiki seems too easy for me, scholarship-wise (sorry, a snob). But Wiki can be wrong much of the time, you know? So this is my main suggestion. Another is to perhaps start with an image that resonates. You could, for example, start with a moment with your son (but not sure if you want to delay his entry to the piece…just thinking out loud here). More so I am thinking about a powerful image system. The way your son being stuck at the road side somehow mirrors your mention of the boy who died. Start to think of the piece as building an image system beyond the over-lapping circles. But this could also be a returning theme (other circular images…a coffee ring, a ring taken off a finger, etc).
I love the ending very much, it's sort of what the essay is aiming to say all along "who will love him"? And reminds me of the end of D'Agata's piece. I am not sure, however, about the repetition of the word, "love." I'd like (maybe) just to see it once at the end. But I am not entirely wed to this idea. Very impressed with the polish you've achieved here. And its beauty and creativity. I am not sure I've seen a piece like this.
Such great work. An honor to read. best, Sarah
Yowza! You combined two of my favorite things, Venn diagrams and great writing. I don't have much to add beyond the fact that this is a really good piece of writing. It is absolutely fresh and fierce.
ReplyDelete-AP